Most people who haven’t been personally affected (either through own experience or seeing a loved one impacted by Long-COVID) have little to no understanding of Long-COVID. This makes raising awareness even harder, because people think they’re informed.

For example, many people believe Long COVID is when someone is a bit tired has some lingering symptoms after a COVID infection. They think it’s a slow recovery from COVID. However, some people are no better 3 after their first COVID infection.

This is the exact reason why raising awareness of #MyalgicEncephalomyelitis has been so difficult. When people develop it they often say I had no idea how severe a disease this was.

We need a #LongCovid awareness campaign now!